February 7-14 is Congenital Heart Defect Awareness Week. My Quirky Son has teamed up with us to help raise awareness for those affected. I have been following the journey of a few families via Facebook who are local to Cincinnati. I have completely fallen in love with these sweet little faces who have overcome many odds.
Prayer Chain for Baby Ava: Follow the journey of baby Ava and her family as they battle Hypoplastic Right Heart Syndrome. Through her page, I have celebrated her birth and her many milestones she has reached since then. It is IMPOSSIBLE not to fall in love with her!
Baby Jacob: Join Baby Jacob and his family on their journey of battling CHD. Jacob recently celebrated his first birthday, which many CHD babies do not reach. I have been following his story for a few months now and I just love his sweet face!
Brooklyn The Brave: Follow Baby Brooklyn’s story of overcoming Heterotaxy Syndrome. I came across her page though my husband’s co worker, who is her uncle. She has come so far in just a short few months and through her page, we have celebrated every milestone with her family. She is the cutest little thing!
Get the Facts About Congenital Heart Defects/Disease:
- Congenital heart defects are the #1 birth defect.
- Congenital heart defects are the leading cause of infant deaths in the USA.
- Approximately 1 of every 100 babies are born with a CHD.
- Over 50% of children born with CHD will have at least one, if not multiple invasive surgeries in their lifetime.
- There are more than 40 different types of congenital heart defects.
- Approximately 40,000 babies are born in the United States with a CHD, each year.
- Thousands of those babies will not reach their first birthday or adulthood.
- Most children/adults with complex congenital heart disease also have neurological and developmental disabilities.
- There are an estimated 2,000,000 CHD survivors in the United States.
To learn more about CHD visit The Children’s Heart Foundation.