February 7-14 is Congenital Heart Defect Awareness Week. My Quirky Son has teamed up with us to help raise awareness for those affected. I have been following the journey of a few families via Facebook who are local to Cincinnati. I have completely fallen in love with these sweet little faces who have overcome many odds.
Prayer Chain for Baby Ava: Follow the journey of baby Ava and her family as they battle Hypoplastic Right Heart Syndrome. Through her page, I have celebrated her birth and her many milestones she has reached since then. It is IMPOSSIBLE not to fall in love with her!
Baby Jacob: Join Baby Jacob and his family on their journey of battling CHD. Jacob recently celebrated his first birthday, which many CHD babies do not reach. I have been following his story for a few months now and I just love his sweet face!
Brooklyn The Brave: Follow Baby Brooklyn’s story of overcoming Heterotaxy Syndrome. I came across her page though my husband’s co worker, who is her uncle. She has come so far in just a short few months and through her page, we have celebrated every milestone with her family. She is the cutest little thing!
Get the Facts About Congenital Heart Defects/Disease:
- Congenital heart defects are the #1 birth defect.
- Congenital heart defects are the leading cause of infant deaths in the USA.
- Approximately 1 of every 100 babies are born with a CHD.
- Over 50% of children born with CHD will have at least one, if not multiple invasive surgeries in their lifetime.
- There are more than 40 different types of congenital heart defects.
- Approximately 40,000 babies are born in the United States with a CHD, each year.
- Thousands of those babies will not reach their first birthday or adulthood.
- Most children/adults with complex congenital heart disease also have neurological and developmental disabilities.
- There are an estimated 2,000,000 CHD survivors in the United States.
To learn more about CHD visit The Children’s Heart Foundation.
Additional CHD Pages on Facebook:
Go Like them ALL!
Angels with Missing Pieces 22q
Prayers From The Heart For Sawyer
CHD Fighter! Chloe and Her Journey with Multiple CHD’s
Supporters of Dylan Dainger HLHS Warrior
Praying for Baby Bradley Cole Woodward
I think a girl from high school’s son had to have his heart replaced due to this condition. It was so hard on her family when they got sick. Thanks for spreading awareness for this great cause!
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I had no idea they have a special week to bring awareness to the congenital heart defect issues. It definitely brought awareness to me! I’ve known a few people that had this issue when they were babies. It is terrifying for parents and hard on them as they grow older if not fixed properly.
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Twitter: justakesphotos
says:
As a mama I feel so heartbroken about those poor babies. But so very proud that they are fighting right along side mom, dad, and all who are helping them. I had no idea this week was CHD week! Thank you for sharing this information and informing me of what a horrible defect this is.
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Twitter: FiveInOhio
says:
What precious little babies… I sincerely hope that there comes a day when the doctors can fix,or completely put an end to horrible stuff like this!
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Twitter: lifeacc2amanda
says:
My cousin had a Congenital Heart Defect that had to be replaced. It is always so good to have a week to recognize things like this!
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My son was born with a CHD also. Please check out his page<3
My son (Bradley Woodard) was born with a CHD also. Please check out his page<3
https://www.facebook.com/#!/pages/Praying-for-Baby-Bradley-Cole-Woodard/169520929824575?fref=ts
Twitter: corbinsheart
says:
Thank you for listing Corbin’s Story!
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